Parents of children with disabilities are fighters. Children with disabilities didn’t have access to educational systems, or at least not to the extent that they do now. In November of 2015, we celebrated the 40th anniversary of the federal law that guaranteed educational access for students with disabilities: The Education for All Handicapped Children Act, signed by President Ford in 1975, and later renamed the Individuals with Disabilities Education Act, when reauthorized by President Clinton in 1997.
There was a movement that led to legislation, and that in turn, led to the passage of PL 94-142 (IDEA). Thanks to continued parental involvement, there was more legislation that was passed after that. Parents fought to have the rights of their children recognized as well as their own. Before the passage of IDEA, there was a substantial number of students with special needs who did not have adequate access to education. IDEA guaranteed this access and created a scaffold, a backbone so that new legislation can build upon it and protect our children.
If you are a parent, a family member of a child with special needs, never hesitate to pursue what’s best for your child. You have a lot of power within you, and being a family member puts you in a very special position. You can see things in a very unique way.
I know that when your child gets diagnosed, you may be shocked, in denial. If you are confused, are ambivalent, or are not sure how to start, what to say, please do not hesitate to contact me for guidance. You are not alone!